Hi! Thanks for visiting my blog. My name is Ali Barton. I am 34 years old and finally living a healthy and full life after going into heart failure at 21 weeks pregnant with my son. I first became ill with a mysterious mass in my right ventricle in 2010. Doctors never had a exact diagnosis, but after I was diagnosed with celiac, went gluten free, and took steroids for nearly a year, the mass disappeared.
In 2012, My husband Andrew and I did 4 IVF cycles to get pregnant with our son, and early in the pregnancy, I developed bizarre symptoms that we later found out were due to a misdiagnosis of my condition. I was told I had endomyocardial fibrosis, and I would need to abort my 21 week son. I refused, so I lived in the hospital from that point on. Our sassy and handsome son Ethan Matthew was born early on February 1, 2014 at 31 weeks, weighing 3 pounds and one ounce. He truly is a miracle child. I was told he would likely be born at 24 weeks, and that both of us could die during birth. He is now in perfect health and is my favorite partner in crime 🙂 .
Things went downhill quickly after he was born. I went on to receive my heart transplant when he was six months old, after we traveled to Tampa, FL for a shorter wait list. This blog will talk about my medical history and experience with the transplant, and will also touch on some health and psychology topics, gastrointestinal health and women’s issues (my coaching specialties), and my daily shenanigans as a mom. I will also share some excerpts from my memoir, Against Doctor’s Orders.
I am a stay-at-home mom, a wife to my sweet Andrew, a psychotherapist, yoga teacher, and a wellness coach. My career is on the back burner as I focus on my recovery post heart transplant, and raising my son (without messing him up too much😉 ).
Please feel free to email me at ali dot barton15 at gmail dot com.